Other Resources

The following is a list of resources recommended by individuals who deal with arthrogryposis.

Arizona

Muscular Dystrophy Association
Bob Mackle, Director of Public Information
3300 E. Sunrise Dr.
Tucson, AZ 85718-3208
Phone: 800-572-1717
Fax: 520-29-5300
E-mail: mda@mdausa.org
Websites: http://www.mdausa.org, http://www.mdaenespanol.org

California

University of the Pacific
School of Dentistry
Special Needs Program
2155 Webster St.
Floor Level B
San Francisco, CA 94115
Phone: 415-929-6426

Indiana

Muscular Dystrophy
Family Foundation Inc.
Judith Duncan, President & CEO Beth Allison,
Director of Social Services
2330 N. Meridian St.
Indianapolis, IN 46208-5730
Phone: 800-544-1213
Fax: 317-923-6334
E-mail: mdff@mdff.org
Website: http://www.mdff.org

Wisconsin

Cerebral Palsy, Inc
2801 S. Webster Ave.
Green Bay, WI 54301
Phone: 920-337-1122

  • They have PT, OT, & aquatic therapies for adults and children, as well as an integrated day care and adult services

 

Country Kids Therapy Services
1120 Orlando Dr.
DePere, WI 54115
Phone: 920-339-0700

  • In addition to PT & OT, they provide hippotherapy, which is with horses

 

Rehab Designs of America (orthotics)
720 S. VanBuren St.
Green Bay, WI
Phone: 920-432-4909

Other Countries

Glen Rose Rehab Centre
Edmonton, Alberta
CANADA

Muscular Dystrophy  Canada
Marg Otter, Director of Services
2345 Yonge Steet., Suite 901
Toronto, ON
CANADA M4P 2E5
Phone, toll-free: 1-866-MUSCLE-8 (Canada only)
Phone: 416-488-2699 ext. 162
Fax: 416-488-0107
E-mail: marg.otter@muscle.ca
Website: http://www.muscle.ca

Society for Muscular Dystrophy Information International
PO Box 479
Bridgewater, NS
CANADA B4V 2X6
Phone: 902-685-3961
Fax: 902-685-3962
E-mail: smdi@aura.com
Website: http://users.auracom.com/smdi/

ADAC
Asociación para las Deficiencias que
Afectan al Crecimiento y al Desarrollo
Manuel Villalobos 41
41009 Sevilla, SPAIN
Phone: +34 954989889
Phone and Fax: 954 35 8786
Teresa Barco Olmeda, President
Website: http://www.enfermedades-raras.org/es/mem_2.htm

  • An association that deals with diseases that affect growth and development

 

Last updated June 26th, 2003